Friday, September 17, 2010

...And The Wait Continues.

After waiting for one and a half hours in the clinic today, we finally got the results of Dad's PET scan:
the cancer hasn't spread. Thank god.
There's a small mass in Dad's thyroid gland, so we are looking at the possibility of another biopsy in the very near future, before they operate, to see what it is.

That's quite literally the only information we got out of today's appointment.
They were supposed to have presented Dad's case to a board of doctors, but they hadn't even gotten around to that almost THREE WEEKS after they got the results. We got the registrar, not the usual surgeon we deal with, and this kid couldn't have been much older than me and was an incompetent imbecile.
We were in and out in under 5 minutes- and he didn't even ask if we had any questions.
He practically turfed us out. Grr.

So like I said, other than that, we have no more news. No operation date, no nothing.
I love how organised our doctors and surgeons are this time round (please note the sarcasm).

Thank you all for your love, prayers and kind words, too. We appreciate them more than you could know.

We'll let you know as soon as we know anything.

Tuesday, September 14, 2010

The Wait

D-day is Friday.
We'll let you all know when we know.

Please don't all call us; we'll call you.

Thursday, September 2, 2010

An Introduction

This blog is not just about cancer, or feelings, or medicine or food.
It is about family. My family.
My family is my Father, Barry, my Mother, Jenni, and myself.
This blog is about my family's fight with cancer.

In December 2002, my father, Barry, was diagnosed with advanced throat cancer. A few days later, he was on the operating table at Royal Perth Hospital (RPH). He was given a laryngectomy (pron. larin-ject-oh-me), which very basically means that surgeons totally removed his voice box, and they also created1 what is known as a tracheostoma2, which sits between his clavicles3. My father chooses to cover his with a "collar", while others will cover theirs with gauze; some will just leave it uncovered.

In short, he was cut from behind his left ear, all the way down to where the stoma2 sits, and then all the way up to behind his right ear. The surgeons then took tissue from his chest to rebuild his neck (other wise he would have looked pretty lopsided).

Before the operation (which combined both curative4 surgery and reconstructive5 surgery) we were given an approximate time-frame for a number of things, like how long he would be in hospital, how long it would take for him to be able to eat, etc. He did it all, and ahead of schedule, too.

Dad is a fighter. He amazed doctors with his sheer determination and mental strength. After being home for a month, he started radiotherapy. While it made him tired and sore, he powered on. Dad was supposed to do heaps of rehabilitation excersises to help with gaining strength back after the surgery on his chest. He took one look at them, thought, "Bugger this for a joke", and set about painting the gutters on our house instead. Yeah, it took him weeks and weeks to finish it, but doing something that was constructive as well as beneficial to his rehabilitation made more sense to him than normal rehab exercises. It also gave him a sense of "normalcy".
My father is a very special man.

After that ride, it took a while for us all to recover. Mum was working two jobs to cover medical bills (since Dad couldn't work for 6 months after the operation), and I wasn't able to help much since I was only 11 at the time. But we got through it, especially with the help of our extended family and friends.

In the middle of 2003, when I was 12, Dad went back to work. It was quite an achievement, as the doctors had expected it to be at least a year before he would have the strength to do it. But he did it.

By late 2003, Mum had started working in a Primary School as an education assistant to children with disabilities- a job she loves and is still doing today.

The years that followed weren't always easy- we all struggled a bit to deal with what had happened. The lifestyle change was huge, especially for Dad, but he pushed on and kept going. We all did.

More years passed and in 2008, I graduated high school. I started University in 2009 and then at the end of that year, I decided to take some time off to work and see what the "real world" was like.

At the start of 2010, Dad started complaining of a sore throat again, and started having trouble swallowing. We initially didn't think much of it, as Dad had been operated on once before to remove scar tissue that was the result of the radical operation he had in 2002. His symptoms were the same as the "scar tissue" episode. By June this year, it had gotten worse, so he went to see his GP again. She referred him straight to his ENT7 specialist, who sent him for CAT scans, biopsies and the like.

On this Monday, the 30th of August 2010, after 8 years in remission, Dad was diagnosed again with throat cancer. It was a primary tumour, which pretty much means it isn't related to his last one; it is a brand new cancer, unlike a secondary tumour, which is an "off shoot" of an older tumour. We were informed that because of Dad's previous radiotherapy treatment, radiotherapy couldn't be used again. Chemotherapy is not an option either, as it only stops metastatic cells from travelling through the circulatory system. Dad would have to go for a P.E.T. scan to see if the cancer had metastasized9. If it has, there is not much, if anything, modern medicine can do, except make him comfortable. If the cancer hasn't spread, then they can operate. Surgeons will remove everything they reconstructed the first time around, and take more as well. Dad will lose the top part of his oesophagus10, which will then be reconstructed with a pieces of skin, arteries and veins from his arm. He will probably never be able to talk or work again. Eating will be much harder, and due to the oesophageal reconstruction, will have to be fed through a tube directly into his stomach for a few months.

Yesterday, the 1st of Sepetember 2010, Dad went for a PET scan8 at Sir Charles Gairdner Hospital. We find out the results soon.

So that's where we're at.
Please feel free to ask questions and leave comments.

I'll keep you all updated.

Explainations and Details
1. The procedure is called a tracheotomy.
2. A tracheostoma is an opening in to the tachea (wind pipe), which leads straight into the lungs. We call it a "Trache" or "Stoma" for short.
3. Collar bones.
4. Removal of tumour (when confined to one area).
5. Restoration of looks and/or function.
6. Voice is achieved though esophageal speech.
7. Ear, Nose and Throat.
8. Positron Emission Tomography scan.
9. Spread.
10. Tube that food passes through, from mouth to stomach.