Sunday, January 16, 2011

Hotel de Barry

Hi kids!

Last time I updated things weren't looking too good, but true to form Dad's done a complete 180.
Sorry I haven't updated for ages again, but we wanted to sort everything out before I posted.

Dad has gone in to palliative care in Murdoch (which is the south end of whoop-whoop when coming from our place near the Swan Valley). I'm not going to go into great detail as to why Dad is now in palliative care, but it wasn't working having Dad at home. We couldn't give him the care he needs, and moving Dad to Murdoch was reccommended to us by his pain-management team at Royal Perth, since his pain is becoming a lot more unmanageable. I will not have anyone question why Dad, Mum and I, as a family, have decided to do this. I will not have anyone make the assumption we have abandonded Dad, or given up on him. Some people have been hinting quite un-subltely that it's not the right thing to do, and all I will say is that you have no idea what it is like at home, so until you do (and I hope to whatever diety you believe in that you never have to), don't pretend to be an expert on, or totally cool with, caring for someone who could quite possibly bleed to death at any moment (and who has now had 4 bleeds in a month, with one of those at home). Let me tell you, it's not easy, for Dad, Mum, or myself.
 EDIT: and I'd also like to say thank you to everyone who has been supporting Dad, Mum and I through this decision, whether it be in the form of a hug, an email or some kind words. It makes it a lot easier for us knowing we have people who understand, or at the very least see, where we are coming from.

Moving on, the hospice is a 45 minute drive in no traffic, and at least a 1hr 15min drive in peak hour- pain in the bum, yes, but the place is amazing. Dad has his own spacious room (it's as big as our living room!), complete with his own private bathroom, a flat-screen TV, bar fridge, carved headboard for his hospital bed and ceiling-to-floor windows with access to a paved courtyard. The courtyard has about 10 outdoor settings, and leads to manicured lawns with pergolas for picnics. In the complex, there are "conversation areas" scattered throughout, with armchairs and fish tanks and water features. There is also a "family room" with a large flat screen TV, vending machines, fully functional kitchen (for guests to prepare food in), and leading out from this is a kids play area (with better playground equipment than most schools!) and a BBQ area with a whopper of a BBQ. All the staff are AMAZING, to say the least, and in the four days we've been here every staff member has popped their head in to say hello and have a chat. There are no visiting hours, and they can roll in some beds for Mum and I to sleep on, would we like to stay the night.

For those who would like to contact Dad, he's connected to the internet, so you can email him or message him on Facebook. If you'd like to visit Dad, please contact me and I'll give you the address.


  1. hey jess, i have just started to follow your blog as i have not seen you in so long. this is a great idea babe. much love josie xxx

  2. Hey Josie.

    Thanks. :) I miss seeing you at work, I quit in November so I'm missing all my girls like crazy. :(

    Love Jess. xo

  3. Yay no DJs for you babe!

    Where are you working now so I came say hi? And of course give you the biggest cuddle xx

  4. Hey there jess, its mark from total nissan, can i please have the link to you dads facebook page? :)

  5. Hi Mark,

    If you email me at I'll send you the link and Dad's email address, as I would prefer not to stick it up on here :)